Sickle Cell Passport
Critical information when it matters most
The Sickle Cell Passport ensures healthcare staff have immediate access to your child's crisis protocols, pain management plans, and treatment history. Developed with haematology teams, A&E departments, and families affected by sickle cell disease.
Key Features
Everything you need to manage your health information effectively.
Crisis Protocol
Clear, step-by-step guidance for managing a sickle cell crisis, accessible to anyone providing care.
Pain Management Plan
Document your child's pain management protocol including medications, doses, and what works best.
Hospital Information
Store key hospital contacts, consultant details, and treatment history for quick reference.
Health Record
Track transfusions, clinic visits, and important health markers all in one place.
Care Team
Keep contact details for your haematology team, GP, and other healthcare providers together.
Emergency Contacts
Quick access to emergency numbers and what to tell A&E staff when you arrive.
Why Choose Sickle Cell Passport?
- Faster, more effective treatment in A&E
- Clear communication of individual needs
- Reduced stress during crisis situations
- Better continuity between different hospitals
- Empowers young people to advocate for their care
- Comprehensive health record always available
“When we go to A&E now, I just show them Amara's Sickle Cell Passport. They immediately understand her history and what she needs. It's made such a difference to how quickly she gets the right treatment.”
How It Works
Create Your Passport
Work with your haematology team to set up your child's Sickle Cell Passport.
Add Critical Information
Include crisis protocols, pain management plans, and regular treatments.
Keep It Updated
Update after clinic visits, transfusions, or any changes to treatment.
Present in Emergencies
Show your passport to A&E staff to ensure they have the information needed for fast, effective care.
Get the Care You Deserve
Create a Sickle Cell Passport to ensure your child receives fast, effective care wherever they go.
